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Life Goes On
is a self-help patient support group funded and supported by Action
for AIDS (Singapore). It is also now the driving motto of Johnny,
aged 42, a HIV positive patient. Johnny discovered his illness in
1998 when he collapsed at home and was brought to the hospital.
Johnny's first reaction was one of shock and devastation. For Johnny
and all AIDs patients, it is an uphill struggle to face the social
stigma, high cost and perennial side effects of treatment.
To help spread
the message of Aids prevention, CGH invited Mrs Iris Verghese, HIV
Programme Assistant at TTSH Communicable Disease Centre to talk
on "Coping with the new challenges in the era of active-retro
viral therapy". At the same time, a personal account of living
with Aids was given by Johnny.
Johnny confided
how he coped with AIDs at his work place, how his friends reacted,
and his driving force right now... "When I told my friends
about my condition, many of them turned away and I have not heard
from them since."
Johnny has also
kept his condition under wraps from his employer and office as he
is afraid they might ask him to leave. Now, Johnny is passionate
about leading a better life. He finds his strength through his church,
religious groups, Action for AIDs and other support groups. Treatment
also comes with a hefty price... $2,000 every month. And the side
effect of diarrhoea from the more aggressive drugs he has started
on causes him a great deal of discomfort.
Even though
AIDs was first diagnosed in Singapore in 1985, and there has been
much publicity about AIDs, many people are still in the dark as
to how to react to AIDs. The problems do not just lie with ignorance
but also acceptance.
Mrs Verghese
who has been a real solace to AIDs patients at the Centre says,
"There is still a great fear of the unknown." Mrs Verghese
also recounts stories of AIDs patients who were kicked out of their
homes as their families have asked them to stay away.
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